No catches, no fine print just unadulterated book loving, with your favourite books saved to your own digital bookshelf.
New members get entered into our monthly draw to win £100 to spend in your local bookshop Plus lots lots more…Find out more
Absorbing, poignant story of a family’s emotional rollercoaster in the aftermath of participating in a risky medical trial.
This poignant page-turner switches between the four members of the Willows family - a sixty-something couple and their two daughters, one of whom, 38-year-old Take That fan Patience, has Rett syndrome, a progressive genetic neurodevelopmental disorder that almost exclusively affects females. While she can’t speak or move, Patience is incredibly perceptive. She takes everything in and knows everyone’s secrets. She’s wryly funny too, remarking to herself that, “I’m still lying here, like Miss Havisham’s mouldering wedding cake, at least ten years after I should have left.”
Former nurse Louise has devoted her life to Patience and understands her daughter better than anyone. Meanwhile, Patience’s 36-year-old sister Eliza is in denial about being dumped by her fiancé, while Dad Pete works overseas most of the time. Then comes a ray of hope, in Louise’s eyes at least. She takes on a job with a leading Rett syndrome consultant, essentially so Patience can be part of his potentially ground-breaking gene therapy trial. While Professor Larssen thinks the therapy could reverse the syndrome’s symptoms, Pete is vehemently against Patience’s participation - he thinks the risks are too great.
Despite the dangers, they go ahead, and the story accelerates to an emotional, edge-of-your-seat ending, underpinned by a fine exposition of how humans weather the worst of life’s storms to cope with the unexpected hands we are dealt.
If you were offered a chance to cure your child's disease, would you take it?
The Willows have been through a lot. Louise has devoted her life to caring for her disabled youngest daughter. Pete works abroad, almost never seeing his loved ones. And their eldest, Eliza, is burdened by all the secrets she's trying to keep from her overloaded family.
Meanwhile, Patience observes the world while trapped in her own body. She laughs, she cries, she has opinions and knows what she wants. But those who love her most - and make every decision about her life - will never know.
Or will they? When the Willows are offered the opportunity for Patience to take part in a new gene therapy trial to cure her Rett syndrome, they face an impossible dilemma. Are the very real risks worth the chance of the reward, no matter how small?
|Publication date:||5th August 2021|
|Publisher:||Head of Zeus|
|Primary Genre||Modern and Contemporary Fiction|
'An extraordinary novel about love and hope and family and what happens in the space between the words. I adored it' -- Kirsten Hesketh, author of Another Us
'An eye-opening, sincere and beautiful debut ... A really special novel that I suspect will have a tangible effect on readers' - NB Magazine
Victoria Scott has been a journalist for almost two decades, working for a wide variety of outlets including the BBC, Al Jazeera, Time Out, Doha News and the Telegraph. Alongside her love of telling real-life stories, she has also always written fiction, penning plays, stories and poems ever since she first worked out how to use her parents' electric typewriter. When she's not writing, Victoria enjoys running incredibly slowly, singing loudly, baking badly and travelling the world extensively. Victoria is a Faber Academy graduate. She has a degree in English from King's College, London and a Postgraduate Diploma in Broadcast ...More About Victoria Scott