"A moving cultural history of disability—and a powerful call to action to change how our medical system and society supports those with complex chronic conditions
From lupus to Lyme, invisible illness is often dismissed by everyone but the sufferers. Why does the medical establishment continually insist that, when symptoms are hard to explain, they are probably just in your head?
Inspired by her work with long Covid patients, medical anthropologist Emily Mendenhall traces the story of complex chronic conditions from hysteria to long Covid to show why both research and practice fail so many. Mendenhall points out disconnects between the reality of chronic disease—which typically involves multiple intersecting problems resulting in unique, individualized illness—and the assumptions of medical providers, who behave as though illnesses have uniform effects for everyone. And while invisible illnesses have historically been associated with white middle-class women, being believed that you are sick is even more difficult when you're Black, trans, poor, young, disabled, or undocumented. Weaving together cultural history with intimate interviews, Invisible Illness lifts up the experiences of those living with complex illness to expose the failures of the American healthcare system—and how we can do better."
"Unmasked is the story of what happened in Okoboji, a small Iowan tourist town, when a collective turn from the coronavirus to the economy occurred in the COVID summer of 2020. State political failures, local negotiations among political and public health leaders, and community (dis)belief about the virus resulted in Okoboji being declared a hotspot just before the Independence Day weekend, when an influx of half a million people visit the town.
The story is both personal and political. Author Emily Mendenhall, an anthropologist at Georgetown University, grew up in Okoboji, and her family still lives there. As the events unfolded, Mendenhall was in Okoboji, where she spoke formally with over 100 people and observed a community that rejected public health guidance, revealing deep-seated mistrust in outsiders and strong commitments to local thinking. Unmasked is a fascinating and heartbreaking account of where people put their trust, and how isolationist popular beliefs can be in America's small communities.
THIS AUDIOBOOK MAY INCLUDE INFORMATION REGARDING THE COVID-19 PANDEMIC. INFORMATION RELATED TO COVID-19 CONTINUES TO EVOLVE. AUDIOBOOKS.COM ENCOURAGES YOU TO SEEK UP-TO-DATE INFORMATION AND GUIDANCE FROM YOUR LOCAL PUBLIC HEALTH UNIT."
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