A truly heart warming and searingly honest chronicle of a mother’s love and support for a son born with severe disabilities. A completely inspirational story of hope.
Jessica Moxham thought that she had thoroughly prepared for the birth of her baby, with antenatal classes, books on parenting and advice from family and friends. But when Ben was born fighting to stay alive, Jessica knew that she was facing a very different reality from that which she had expected.
Subtitled What I Learned from my Disabled Son, Moxham documents each and every stage of what it means, and what is required, to be the parent of a child who will never be able to communicate or move without assistance.
From feeding Ben when he can’t eat, to dealing with the labyrinthine red tape and administration required to access the services and support she needs, her deeply moving account faces down the issues of discrimination and Ben’s rights with candour and open-hearted understanding of the world that she is bringing Ben up in.
In essence Jessica Moxham has written an extended love letter her son and a rousing call for tolerance and understanding in our views of disability and difference; what it means and how our reactions to it speaks of us as people and as a nation.
In her unflinching and hugely uplifting account, Moxham reminds us all of the strength and commitment that parenting requires, the power of family and undying love, and offers solace and hope to all who face obstacles in bringing up a child. It is at once heart-achingly beautiful and heart-warmingly hopeful.
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Jessica Moxham thought she was prepared for the experience of motherhood. Armed with advice from friends and family, parenting books and antenatal classes, she felt ready. After giving birth, she found herself facing a different, more uncertain reality. Her son, Ben, was fighting to stay alive. When Jessica could finally take him home from hospital, the challenges were far from over.
In this hopeful memoir, Jessica shares her journey in raising Ben. His disability means he will never be able to move or communicate without assistance. Jessica has to learn how to feed Ben when he can't eat, wrestle with red tape to secure his education and defend his basic rights in the face of discrimination. As Ben begins to thrive, alongside his two younger siblings, Jessica finds that caring for a child with unique needs teaches her about appreciating difference and doing things your own way. This uplifting story is about the power of family love, finding inner strength and, above all, hope.
|Publication date:||4th March 2021|
|Publisher:||Endeavour an imprint of Octopus Publishing Group|
|Primary Genre||Biographies & Autobiographies|
A powerful, moving and inspiring story - it opens up a whole new world of understanding. -- Esther Freud
An honest and unflinching account of Jessica's journey as the mother of a child born with complex needs. Essential reading... and a source of solace for those who may find themselves on a similar path. -- Leah Hazard - author of Hard Pushed: A Midwife's Story
Jessica's beautiful words gave me a deeper understanding about embracing disability. I am inspired and will be recommending this book to parents as a testament to following your parenting instincts. -- Arabella Carter-Johnson - author of Iris Grace
'This is wonderful. I urge you to read it. It is life enhancing and I defy you not to fall in love with Ben!' Natasha Poliszczuk, Books Editor, You Magazine
Jessica Moxham is a writer with interest in the areas of parenting and disability. Her eldest son, Ben, is severely disabled, and she writes a blog discussing how she and her family support him with - and learn from - his disability. Her blog is read by parents, health professionals and educators, among others. Jessica has given lectures to health professionals on her family's experience, from small groups of students to more than 100 doctors at the Royal College of Paediatrics and Child Health. She has been interviewed on BBC Radio 5 Live and has written for the Guardian on austerity and ...More About Jessica Moxham